So news juat broke that a new medicine is going for FDA approval!! The medicine right now is VX-770 but I am thinking that it will prob get changed to something different. This medicine is only for people with certain CF mutations, so Keagan will not benefit from this medicine. VX-770 will only benefit 4% of the people who have CF. This medication will help improve overall health of the CF patients with the mutations Delta F508 and G551D. The research company who developed this med has more in the works to help other CF'ers with other mutations. I know that one day the awesome researchers will have something to make Keagan breathe easier, gain weight easier, and taste less salty! But unfortunately, CF research is not government funded so unless people like you donate money that one day may never come for Keagan or the 30,000 other people in the U.S and there are more worldwide. So if you haven't already helped to make this easier by donating to the CFF through someone's Grreat Strides team page or the CFF directly then please do so. One day we will together make CF stand for CURE FOUND! Thank you to everyone who already supports the CFF! If you would like to help Keagan's Great Strides team then you may do one of the following:
1) go to www.cff.org/great_strides/krystalcovington and doante
2) order a team shirt $15 for adults and $10 for youth/toddler e-mail me email@example.com
3) my mom is selling CF bracelets and keychains e-mail he firstname.lastname@example.org
or you can donate directly to the foundation at http://www.cff.org/
THANKS AGAIN FOR ALL THE SUPPORT AND LOVE! KEAGAN CAN'T DO IT WITHOUT ALL OF US!